Patient and Family Resources 

Our caring staff of oncologists, nurses and other professionals are available any time to answer patient and family questions and can refer patients and families to outside information sources as needed.  We also recommend the following Web sites:

American Cancer Society (www.cancer.org)
The American Cancer Society (ACS) is committed to fighting cancer through balanced programs of research, education, patient service, advocacy, and rehabilitation.  

Tom Coughlin Jay Fund (www.tcjayfund.org )

The mission of the Tom Coughlin Jay Fund Foundation is to assist children with leukemia and other cancers and their families by providing emotional and financial support to help reduce the stress associated with treatment and improve their quality of life.

Dreams Come True (www.dreamscometrue.org )

Dreams Come True has made the special desires of more than 2,200 children come true. Dreams provide these wonderful children and their families with a momentary reprieve from the rigors of medical treatment often associated with life-threatening illnesses.

Deliver the Dream (www.deliverthedream.org)

Deliver the Dream is a retreat program that enables families who are experiencing serious illness or crisis to regain strength, mend spirits and just be families and kids again.

CureSearch (www.curesearch.org)
CureSearch represents the combined efforts of the Children's Oncology Group (COG) and the National Childhood Cancer Foundation (NCCF), two organizations united by a common goal: finding a cure for childhood cancer. This site helps you find information related to specific cancer type, treatment stage and age group, as well as tips on navigating the healthcare system and how to get support.

The National Children's Cancer Society (www.thenccs.org/#)
The mission of The National Children's Cancer Society is to improve the quality of life for children with cancer by promoting children's health through financial and in-kind assistance, advocacy, support services and education. This site offers information and a support network for teens, adults, parents and children.

Children's Brain Tumor Foundation (www.cbtf.org)
The Children's Brain Tumor Foundation's mission is to improve the treatment, quality of life and the long-term outlook for children with brain and spinal cord tumors through research, support, education and advocacy to families and survivors. This site provides an array of information and resources to assist you in accessing expert care to ensure quality of life for the child with a brain or spinal cord tumor.

Leukemia and Lymphoma Society of America (www.lls.org)
Offers family support group programs, referrals to local resources, education, patient aid and research funding.  Focuses on leukemia, lymphomas, myeloma and Hodgkin’s disease.  Offers limited financial assistance for drugs used in care, treatment, and/or control of disease and transportation to treatment centers.

Lymphoma Research Foundation of America, Inc. (www.lymphoma.org)
The nation's largest lymphoma-focused voluntary health organization devoted exclusively to funding lymphoma research and providing patients and health care professionals with critical information on the disease. LRF's mission is to eradicate lymphoma and serve those touched by this disease.

BMT InFonet (www.bmtinfonet.org)
Since 1990, BMT InfoNet has provided quality information and emotional support to more than 100,000 transplant patients, survivors and their loved ones. This site is particularly helpful because it is a collaboration between BMT medical experts and transplant patients and their families. The information provided is both accurate and practical.

National Marrow Donor Program (www.marrow.org)
The registry matches life-saving donors with patients who have leukemia, lymphoma and other life-threatening diseases that can be treated by a bone marrow or cord blood transplant.

National Cancer Institute (www.cancer.gov)
The National Cancer Institute coordinates the National Cancer Program, which conducts and supports research, training, health information dissemination, and other programs with respect to the cause, diagnosis, prevention, and treatment of cancer, rehabilitation from cancer, and the continuing care of cancer patients and the families of cancer patients. 

OncoLink (www.oncolink.org)
OncoLink's mission is to help cancer patients, families, health care professionals and the general public get accurate cancer-related information at no charge. Through OncoLink you can get comprehensive information about specific types of cancer, updates on cancer treatments and news about research advances. We update the information everyday and provide information at various levels, from introductory to in-depth.

Boggy Creek Gang (www.boggycreek.org)
A nonprofit medical camping center specifically designed and equipped for children younger than 17 who have or have had a chronic or life-threatening illnesses.


 
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